Today, I was privileged to visit the Sickle Cell Orphanage & Underprivileged Home in Agulu as part of the global observance of United Nations World Sickle Cell Day.
Behind every brave smile is a story of resilience. Behind every child’s eyes, a spark of hope. This visit reminded me that we are only as strong as the most vulnerable among us—and that service is our highest calling.
Sickle cell disease (SCD) is one of the most widespread and painful genetic disorders in the world, affecting an estimated 7.7 million people globally. [Greene, D., Hankins, J., & Schoumacher, R. (2014)]Sub-Saharan Africa bears the brunt of this disease, accounting for approximately 80% of all SCD cases worldwide.
Nigeria, in particular, has the highest burden, with thousands of children born each year with the condition.
The disorder does not discriminate, and it devastates with cruel persistence—especially in communities with limited access to healthcare. Advocacy and medical interventions are improving: organisations like the World Health Organization (WHO), the United Nations, and countless NGOs are working to raise awareness, improve diagnosis, and expand access to treatment.
Bone marrow transplants offer hope to a few, while research into gene therapies signals a promising future.
Yet, until these solutions are universally accessible, prevention through genetic counselling, early diagnosis, and sustained care remains our best weapon against the disease.
Let us not only raise awareness but raise our hands in compassion. Let us give, visit, encourage, and uplift. Every act of kindness counts.
To the incredible caregivers and children: you are the true heroes of today. And to everyone reading this—may we each do our part in building a world where no one is left behind.
Valentine Ozigbo
#WorldSickleCellDay #ServiceAboveSelf #HopeAndHealing #KaAnambraChawapu #ValentineOzigbo #CompassionInAction #Agulu #LeaveNoOneBehind
